Being a carer

[Taf]

You'll need a formal diagnosis and care plan at least. Plus lists of any medications or treatments you are having.

And it's not WHAT you have, but how it affects your daily life above what a normal person would expect on a majority of days.

DLA or PIP claims depend on your age when you first claim.

[Tinky]

Thanks for that Taf.

[Taf]

https://www.independentage.org/get-a...BoCfncQAvD_BwE

[Hom3r]

Originally Posted by Tinky

Mr T is now my carer I was told yesterday my condition is never going to improve, and I will have to suffer this pain for the rest of my days. We pay a mobile hairdresser and foot lady, and now we will have to employ a gardener and cleaner. So I am going to try and download the form to claim attendance allowance. Any tips on completeing the form or other claims I can make?

I filled the AA form with my sister, it was relatively easy but long winded.


I attached a copy of my dads prescription for them, we got the enhanced rate because I help him go to the loo and sort him out at night.


Once that was done I claimed the Carers element of Universal Credit, this then meant I didn't have to search for work.


Once you get it see if you other half can claim, but I do believe there are exemptions.

[denphone]

Originally Posted by Tinky

Mr T is now my carer I was told yesterday my condition is never going to improve, and I will have to suffer this pain for the rest of my days. We pay a mobile hairdresser and foot lady, and now we will have to employ a gardener and cleaner. So I am going to try and download the form to claim attendance allowance. Any tips on completeing the form or other claims I can make?

l subscribe to this website and pay a fee once a year as its a very helpful site imo.

https://www.benefitsandwork.co.uk/

[joglynne]

My sister in law suffered from debilitating chronic pain in her shoulders, spine and hips following having both viral and meningococcal meningitis . She developed sepsis and luckily survived this but it left her with arthritis and brittle bones.

When all he pain meds became ineffective she was prescribed with morphine pads which helped to begin with but the pain killing effects eventually stopped and at that point she was told that she would """"JUST""" have to live with the pain.

I remember that she was helped by a Pain Management programme, although at first her GP did seemed reluctant to refer her. I do remember that one of the things they advised was that "Distraction" could lessen the pain and she found audio books helped her at night when the pain was at its worst. She also joined the Scope Forum which was a great source of information and support.

I wish there was something I could do to help you sweetie. Maybe these links may help.

<<<<hugs>>>> Jo


https://www.britishpainsociety.org/people-with-pain/
https://forum.scope.org.uk/categories

[Hom3r]

Originally Posted by Tinky

Mr T is now my carer I was told yesterday my condition is never going to improve, and I will have to suffer this pain for the rest of my days. We pay a mobile hairdresser and foot lady, and now we will have to employ a gardener and cleaner.

Just had a thought, have you looked into acupunture?

My sister used it to hep with her IBS, it worked for her (but like medication it takes a few weeks to kick in), she only stopped when the acupunturist asked her was she pregnant, my sister tolder her yes how to you know, and was given an reason.

It might help so look in your area.

[Tinky]

Many thanks to everyone for your concerns and help. I am getting to the end of my tether now. I have tried everything I can think of including 2 visits to a back clinic, acupuncture, deep massage, volatrol gel (POM), tens machine, hemp oil, Kalms, Ashwangandha tablets, alchohol. It is hard to keep going when the pain is with me 24/7. Speaking about this with you all however does give me hope that eventually there is a solution. In my visit to the GP I am going to ask about medicinal marihuana, anyone have experience of this treatment?

[Mr K]

Originally Posted by Tinky

Many thanks to everyone for your concerns and help. I am getting to the end of my tether now. I have tried everything I can think of including 2 visits to a back clinic, acupuncture, deep massage, volatrol gel (POM), tens machine, hemp oil, Kalms, Ashwangandha tablets, alchohol. It is hard to keep going when the pain is with me 24/7. Speaking about this with you all however does give me hope that eventually there is a solution. In my visit to the GP I am going to ask about medicinal marihuana, anyone have experience of this treatment?

You shouldn't have to live with pain. Tell them its making your life a misery. Morphine is the ultimate pain killer, but to be used with care. Ideally they should treat the cause. Getting more mobile helped my back issues, swimming was ideal, or some sort aquarobics/gentle water exercise if you can manage it. The Dr maybe even able to prescribe it. https://www.fhft.nhs.uk/services/phy...se%20tolerance.

[Tinky]

Many thanks Mr K, I have difficulty even dressing and or sitting down, and getting in and out of bed, poor Mr T does his absolute best to help, having being a couch potato for years. I am going to have this out with the doctor when I see him on the 18th. I am sure there are many much worse than me.